基因机器 推动人类自我进化的生物科技 = The Gene machine : how genetic technologies are changing the way we have kids-and the kids we have 🔍
邦妮·罗彻曼 & chenjin5.com cj5, Di 1 ban, Beijing, 2018
中文 [zh] · MOBI · 0.7MB · 2018 · 📕 小说类图书 · 🚀/duxiu/lgli/zlib · Save
描述
科学家们正在努力梳理基因和智力的关系。
备用文件名
zlib/no-category/邦妮·罗彻曼 & chenjin5.com/基因机器:推动人类自我进化的生物科技_18419509.mobi
备选标题
The gene machine : how new genetic technologies are transforming parenting and cracking medical mysteries
备选作者
(美)邦妮·罗彻曼(Bonnie RochMan)著
备选作者
罗彻曼 ((女, RochMan, Bonnie))
备选作者
(美) 罗彻曼
备用出版商
Scientific American / Farrar, Straus and Giroux
备用出版商
China Renmin University Press
备用出版商
North Point Press
备用出版商
北京:中国人民大学出版社
备用出版商
Hill & Wang
备用出版商
Macmillan
备用版本
United States, United States of America
备用版本
First edition., New York State, 2017
备用版本
China, People's Republic, China
备用版本
1, 2017
元数据中的注释
Includes bibliographical references (pages 231-255) and index.
元数据中的注释
Bookmarks: p1 (p1): 引言
p1-1 (p1): 基因检测是一把双刃剑
p2 (p13): 01犹太人如何打败泰-萨克斯病
p2-1 (p13): 做好孕前筛查
p3 (p39): 02扮演上帝,改写家族病史
p3-1 (p39): 移植前基因诊断
p4 (p63): 03医学界的“红字”
p4-1 (p63): 堕胎与基因检测的关系
p5 (p87): 04沉默基因
p5-1 (p87): 唐氏综合征的未来
p6 (p111): 05父母们想要知道什么
p6-1 (p111): 与不确定意义的突变体做斗争
p7 (p133): 06拥有开放性未来的权利
p7-1 (p133): 反馈检测结果大论战
p8 (p155): 07开启诊断新世界
p8-1 (p155): 终结罕见病诊断的奥德赛之旅
p9 (p177): 08基因“瓶中精灵”
p9-1 (p177): 新生儿测序
p10 (p201): 致谢
备用描述
"Is screening for disease in an embryo a humane form of family planning or a slippery slope toward eugenics? Should doctors tell you that your infant daughter is genetically predisposed to breast cancer? If tests revealed that your toddler has a genetic mutation whose significance isn't clear, would you want to know? In The Gene Machine, the award-winning journalist Bonnie Rochman deftly explores these hot-button questions, guiding us through the new frontier of gene technology and how it is transforming medicine, bioethics, health care, and the factors that shape a family. Rochman tells the stories of scientists working to unlock the secrets of the human genome; genetic counselors and spiritual advisers guiding mothers and fathers through life-changing choices; and, of course, parents (including Rochman herself) grappling with revelations that are sometimes joyous, sometimes heartbreaking, but always profound. She navigates the dizzying and constantly expanding array of prenatal and postnatal tests, from carrier screening to genome sequencing, while considering how access to more tests is altering perceptions of disability and changing the conversation about what sort of life is worth living and who draws the line. Along the way, she highlights the most urgent ethical quandary: Is this technology a triumph of modern medicine or a Pandora's box of possibilities? Propelled by human narratives and meticulously reported, The Gene Machine is both a scientific road map and a meditation on our power to shape the future. It is a book that gets to the very core of what it means to be human."--Jacket
备用描述
A Researched Exploration Of The Promises And Vulnerabilities Of Having Children In An Age Of Genetic Tests And Interventions Considers Key Scientific, Technological And Political Factors While Sharing The Stories Of Men And Women Struggling To Understand The Range Of The Tests And Their Revelations,--novelist. How The Jews Beat Tay-sachs (carrier Screening) -- Rewriting A Family's History Of Cancer (preimplantation Diagnosis) -- The Other Scarlet A (abortion) -- Silencing A Gene (the Future Of Down Syndrome) -- What Do Parents Want To Know? (variants Of Unknown Significance) -- Do You Have A Right To An Open Future? (return Of Results) -- How To Hunt A Zebra (rare Disease) -- The Genie In The Bottle (universal Sequencing). Bonnie Rochman. Includes Bibliographical References And Index.
备用描述
Ben shu tan jiu le ji yin gong cheng de yi xie re dian nan ti,Zuo zhe cong xie dai zhe shai cha dao ji yin zu ce xu deng zhong zhong ling ren yan hua liao luan de chan qian,Chan hou ce shi chu fa,Yin dao wo men si kao ji yin ji shu shi ru he ying xiang yi yao yan jiu,Sheng wu lun li,Yi liao bao jian yi ji su zao jia ting de yin su de,Quan fang wei tan tao le fen xiang he jie du ge ti ji yin xin xi dui yi liao,Sheng yu yi ji she hui jie gou de ying xiang
备用描述
在本书中,获奖记者邦妮·罗彻曼深入探究了以上这些热点难题。她从携带者筛查到基因组测序等种种令人眼花缭乱的产前、产后测试出发,引导我们思考基因技术是如何影响了医药研究、生物伦理、医疗保健以及塑造家庭的因素的,全方位探讨了分享和解读个体基因信息对医疗、生育以及社会结构的影响
备用描述
本书探究了基因工程的一些热点难题,作者从携带者筛查到基因组测序等种种令人眼花缭乱的产前,产后测试出发,引导我们思考基因技术是如何影响医药研究,生物伦理,医疗保健以及塑造家庭的因素的,全方位探讨了分享和解读个体基因信息对医疗,生育以及社会结构的影响
备用描述
A sharp-eyed exploration of the promise and peril of having children in an age of genetic tests and interventions
开源日期
2021-12-20
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